MedStar Trick or Treat Kids Selected

The children participating in this year’s MedStar//Pembroke Trick or Treat event have been selected.


Pick-up time for the kiddos will be 5p and they should arrive at the corner of Pembroke and Berkeley by 5:45pm.

---------------------------

Trick or Treat Information 2015

Child #1:

Eden Brooks

 

Age: 6


Arrival Location: Pembroke Drive @ Berkeley Place, Fort Worth

 

Nominated By: Jenna Williams

Relation: Past Trick or Treat Experience Parent

 

Condition:  Eden has a condition called infantile metachromatic leukodystrophy (MLD).  The incidence of is estimated to occur in 1 in 40,000 to 1 in 160,000 individuals worldwide.  Symptoms include muscle wasting and weakness, muscle rigidity, developmental delays, progressive loss of vision leading to blindness, convulsions, impaired swallowing, paralysis, and dementia.  There is currently no treatment or cure for MLD and left untreated, most children with this form of MLD die by age 5, often much sooner.

 

Other information:

Supporting Foundations:     

Hunter’s Hope - www.huntershope.org                                                        

MLD Foundation - www.mldfoundation.org              

 

 

 

Child #2:

Savanah Mahan


Age:     

7 years

 

Parents: Debbie Mahan

 

 

Arrival Location:

Pembroke Drive @ Berkeley Place, Fort Worth

 

Nominated By:

Jason Jean, Brother in Law

 

Condition:

Congenital Cytomegalovirus.  CMV is a group of symptoms that occur when an infant is infected with the CMV before birth.  It occurs when an infected mother passes CMV to the fetus through the placenta.  The mother's illness may not have symptoms, so she may be unaware that she has CMV. 

 

CMV cause complications such as low birth weight, microcephaly (small head size), seizures, petechial rash similar to the "blueberry muffin" rash of congenital rubella syndrome, and moderate hepatosplenomegaly (with jaundice). Though severe cases can be fatal, with supportive treatment most infants with CMV disease will survive.  However, from 80% to 90% will have complications within the first few years of life that may include hearing loss, vision impairment, and varying degrees of mental retardation. 

 

Other information:

Supporting Foundation:  The Brendan B. McGinnis Congenital CMV Foundation - http://www.cmvfoundation.org/